Vedder Cup at stake when Padres face Mariners as part of Pearl Jam singer's charity drive
PEORIA, Ariz. (AP) — The winner of the annual series between the San Diego Padres and Seattle Mariners will now win the ...
Niners Wire12d
Sam Schulz is the toughest person Chris Beard knows. Now he's inspiring Ole Miss basketball
Sam Schulz, a 20-year-old with Epidermolysis Bullosa, has developed a close friendship with Ole Miss basketball coach Chris ...
PMLive14d
Rare diseases: CHMP recommends Krystal’s Vyjuvek for dystrophic epidermolysis bullosa
The European Medicines Agency’s (EMA) human medicines committee has recommended Krystal Biotech’s Vyjuvek (beremagene geperpavec) to treat patients with the ultra-rare genetic blistering disease ...
AOL3d
Vedder Cup at stake when Padres face Mariners as part of Pearl Jam singer's charity drive
This award is part of a charity drive benefiting the Epidermolysis Bullosa Research Partnership, an organization co-founded by Eddie and Jill Vedder. The charity is dedicated to funding research ...
Polar Plunge in honor of Staten Islander with rare skin disease planned for this month
STATEN ISLAND, N.Y. — A fundraising Polar Plunge to honor John Hudson Dilgen will take place this month in South Beach to ...
Independent.ie5d
Irish researchers working on revolutionary new dressing that could repair cells of ‘butterfly-skin’ sufferers
A revolutionary dressing that aims to repair the cells of people with an extremely painful skin condition and prevent infection is being investigated by Irish researchers. It was inspired by the ...