Nora got a new bouncy chair! 💖 She throws herself backwards when we pick her up and try to hold her, so Jacob thought she may like a bouncing sensation and found this! Her grandparents got it for her birthday and it just came in! She vocalizes- what we call “grumbling”- when she’s in it and pulls at the harness since she hates being restrained, but smiles a lot in it too; so the jury is still out to see if it’s a keeper! We will see! 😅 | Nora Rose's Journey

Nora has had a rough few months with increased seizure activity. She has had some seizures so severe that she turns blue after and has required rescue breaths to breathe again. Every time she has had a bad one, her neurology team has increased her seizures meds, and now she’s maxed out on both of the ones she’s always taken. She’s also still having small seizures daily. On top of that, the side effects of the medications make her drowsy and dizzy, which have significantly impacted her ability to